The phased progressive research program aims to address the two objectives using the Double Diamond process over two years. During the Discover phase, evidence acquired through an environmental scan and key informant interviews will be used to map dementia care pathways, components, and contextual factors. The synthesized evidence review will support the Define phase, comprising stakeholder engagement to define and refine the problem. A prototype of a dementia care pathway will be created during the Develop phase. The defining and development stages will consist of World Café workshops. The World Café approach is designed to be as inclusionary as possible and is well suited to creating actionable outcomes with large groups of participants, all of whom are regarded as experts of their own lived experience. Evidence in the literature supports the use of World Cafés with people living with dementia and care partners. The Deliver phase will comprise the integrated knowledge translation strategy of the research program
You are eligible to participate if you are living with dementia or MCI or caring for someone living with dementia or MCI
This study investigates the support needs and experiences of the family and friend caregivers of long-term care residents through an online questionnaire.
You are eligible to participate if you live in Canada, are over 18 years old, and have been providing unpaid care to a long-term care resident for at least 1 month.
This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.
The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).
You are eligible to complete this survey if you are 18 years of age or older and are either:
(1) A caregiver, currently providing care or have provided care recently, within the past year, to a person with a diagnosis of FTD and related disorders. This does not include formal caregivers that provide paid-care, private care services, community funded care services.
(2) A healthcare provider currently working in a primary care clinic and/or in a specialized clinic (e.g., cognitive and movement disorders clinics, memory clinic, etc.) where patients with a diagnosis of FTD and related disorders are assessed and followed clinically. This includes: physicians, nurses, social workers, occupational therapists, neuropsychologists, physiotherapist, etc.
Aim – To determine how continued education and adult learning classes affects brain health and cognitive processing in older adults.
How the information gathered will be used – The results of this study may inform how structural and functional changes lead to the cognitive decline some individuals experience with age and the effect of learning and adult education on cognitive performance in older adults experiencing mild cognitive impairment.
You are eligible to participate if you are:
(1) Aged 60-80 years old,
(2) Live in your own home,
(3) Feel your memory ability has declined in the last 5 years, and
(4) Read, write and speak English.
The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English
The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.
-Are between the age of 65-85
-Are concerned about your memory and other thinking abilities
-Have access to internet at home
-Are a resident of Saskatchewan, Manitoba, Ontario, or Quebec
This Phase 2 study aims to study to evaluate the efficacy and safety of study treatment in paticipants with Mild Cognitive Impairment Due to Alzheimer's Disease or Mild Alzheimer's Disease Dementia
Age 50 - 80
Mild cognitive impairment (MCI) or mild dementia due to Alzheimer's disease
The primary objective of this study is to verify the clinical benefit of monthly doses of aducanumab in slowing cognitive and functional impairment as measured by changes in the Clinical Dementia Rating Scale Sum of Boxes (CDR-SB) score as compared with placebo in participants with early Alzheimer's disease.
Age 60 - 85
Must have a study partner
We are inviting adults 55+ and care partners of people living with dementia to participate in an offering of a six-session culinary nutrition education program. All program participants are invited to take part in an optional research study examining their experiences and outcomes associated with their program participation, but research participation is entirely voluntary.
Live in Saskatchewan (priority will be given to participants living in communities within a 150 km radius of Yorkton,SK)
- Are either 55 or over OR a care partner of a person living with dementia