What is this Study about?

The purpose of this study is to get feedback and guidance to create the Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s disease (NITE-CAD) program. The NITE-CAD program will be an educational and lifestyle program to support care partners to improve the sleep of their person living with dementia. The NITE-CAD program is based on an American program that improved sleep for persons with dementia. The program includes physical activity, light exposure, and education sessions.

We hope to make create the NITE-CAD program to be feasible to deliver within Canada year-round. The results from this advisory group will be used to inform a future pilot study testing the feasibility of the NITE-CAD program.

Participants will receive a remuneration of $20, in the form an electronic money gift card for the retailer of their choice (e.g., Shoppers, Amazon, Indigo, etc.) per meeting and/or reviewed feedback in recognition of their time and contributions.

What is this Study about?

This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.

The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).

What is this Study about?

The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.

In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.

What is this Study about?

The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.

What is this Study about?

We are inviting adults 55+ and care partners of people living with dementia to participate in an offering of a six-session culinary nutrition education program. All program participants are invited to take part in an optional research study examining their experiences and outcomes associated with their program participation, but research participation is entirely voluntary.

What is this Study about?

The aging of the Canadian population and the lack of care personnel increase the number and responsibilities of family caregivers with the elderly. By adopting the first policy recognizing caregivers in Quebec in April 2021, the Quebec government is committed to better supporting caregivers in order to lighten their burden. The time is more appropriate than ever to highlight the reality of informal support for seniors from ethnocultural communities in the context of immigration. More specifically, our study aims to identify the trajectories of caregiving within the Maghreb community. Collecting data from key people would allow us to have an external perspective on the issue studied and would enrich our understanding of the realities and experiences of caregivers in the context of immigration (case study: the North African community), of their network of support as well as the potential impact of migration trajectories and Maghrebian culture on his practice of close care.

What is this Study about?

Smart home technology is being adapted to support the care at home of persons with dementia (PWD). This technology has potential to reduce burden on informal carers and improve their quality of life; however, it is unknown what the desires are of informal carers with respect to the use of smart home technology. This study will interview 15 carers, to determine how smart home technology might address behavioural and safety concerns of their loved one.

What is this Study about?

The aim of our study is to better understand whether certain lifestyle factors (such as physical activity and hearing) are related to early changes in memory and thinking abilities in older adults. We are especially interested in enrolling individuals who are South Asian or East Asian, because little research has focused on brain health in Canadians of diverse racial/ethnic backgrounds.

By participating, you will help us better understand how lifestyle factors are related to memory and thinking changes in adults from diverse communities. We hope that this will lead to improved prevention and early intervention strategies for dementia.

What is this Study about?

The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.