The purpose of this study is to get feedback and guidance to create the Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s disease (NITE-CAD) program. The NITE-CAD program will be an educational and lifestyle program to support care partners to improve the sleep of their person living with dementia. The NITE-CAD program is based on an American program that improved sleep for persons with dementia. The program includes physical activity, light exposure, and education sessions.
We hope to make create the NITE-CAD program to be feasible to deliver within Canada year-round. The results from this advisory group will be used to inform a future pilot study testing the feasibility of the NITE-CAD program.
Participants will receive a remuneration of $20, in the form an electronic money gift card for the retailer of their choice (e.g., Shoppers, Amazon, Indigo, etc.) per meeting and/or reviewed feedback in recognition of their time and contributions.
(1) Able to speak and understand English
(2A) Are a caregiver for a person with dementia with sleep difficulties.
(2B) Self-identify as a persons with dementia, who is currently or has previously experience sleep difficulties.
This is a Canada-wide web-based survey of caregivers and healthcare providers of people with diagnoses of frontotemporal dementia (FTD) and related disorders. The online survey, which is available in English and French, explores the caregivers' and healthcare providers' experiences, needs, opinions, and burdens with regards to providing care to patients living with a diagnosis of FTD across Canada. The survey has been developed by a team of researchers with clinical expertise in diagnosing and treating patients with FTD and related disorders.
The survey is available at https://www.surveymonkey.com/r/Canadian-Survey-on-FTD-and-Related-Disorders and will be open from July 1st, 2023, to June 30, 2024 (12 months).
You are eligible to complete this survey if you are 18 years of age or older and are either:
(1) A caregiver, currently providing care or have provided care recently, within the past year, to a person with a diagnosis of FTD and related disorders. This does not include formal caregivers that provide paid-care, private care services, community funded care services.
(2) A healthcare provider currently working in a primary care clinic and/or in a specialized clinic (e.g., cognitive and movement disorders clinics, memory clinic, etc.) where patients with a diagnosis of FTD and related disorders are assessed and followed clinically. This includes: physicians, nurses, social workers, occupational therapists, neuropsychologists, physiotherapist, etc.
The purpose of this research is to re-imagine and disseminate through documentary film what compassionate, relational end-of-life (EOL) care looks like from the perspectives of diverse people living with dementia, their care partners, and healthcare professionals.
In phase one of the study we will explore understandings of relational end of life care from diverse perspectives using online research conversations.
You are eligible to participate if you...
Live in Canada
Are a Canadian citizen or permanent resident
Have a diagnosis of dementia, are a family member or a bereaved family member (within the last year) of a person living with dementia, or are a professional who works directly with people living with dementia or in palliative care
Are able to speak English
The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.
-Are between the age of 65-85
-Are concerned about your memory and other thinking abilities
-Have access to internet at home
-Are a resident of Saskatchewan, Manitoba, Ontario, or Quebec
We are inviting adults 55+ and care partners of people living with dementia to participate in an offering of a six-session culinary nutrition education program. All program participants are invited to take part in an optional research study examining their experiences and outcomes associated with their program participation, but research participation is entirely voluntary.
Live in Saskatchewan (priority will be given to participants living in communities within a 150 km radius of Yorkton,SK)
- Are either 55 or over OR a care partner of a person living with dementia
The aging of the Canadian population and the lack of care personnel increase the number and responsibilities of family caregivers with the elderly. By adopting the first policy recognizing caregivers in Quebec in April 2021, the Quebec government is committed to better supporting caregivers in order to lighten their burden. The time is more appropriate than ever to highlight the reality of informal support for seniors from ethnocultural communities in the context of immigration. More specifically, our study aims to identify the trajectories of caregiving within the Maghreb community. Collecting data from key people would allow us to have an external perspective on the issue studied and would enrich our understanding of the realities and experiences of caregivers in the context of immigration (case study: the North African community), of their network of support as well as the potential impact of migration trajectories and Maghrebian culture on his practice of close care.
- Be a person over 18 years old.
- Identify yourself as a person of North African origin, i.e. from Morocco, Algeria, Tunisia, Libya and Egypt.
- Be a permanent resident, Canadian citizen by naturalization. Or be born in Canada and have at least one parent born in the Maghreb (Morocco, Algeria, Tunisia, Libya, Egypt).
- Reside in Quebec
- Support an elderly relative who also lives in Quebec or have supported an elderly relative during the last five years.
Smart home technology is being adapted to support the care at home of persons with dementia (PWD). This technology has potential to reduce burden on informal carers and improve their quality of life; however, it is unknown what the desires are of informal carers with respect to the use of smart home technology. This study will interview 15 carers, to determine how smart home technology might address behavioural and safety concerns of their loved one.
You are eligible if you:
-Are an informal caretaker of a person with dementia
- live with the person with dementia, or apart
- Are able to communicate during an interview either in-person, on the phone or by videoconferencing
-Speak English and French
The aim of our study is to better understand whether certain lifestyle factors (such as physical activity and hearing) are related to early changes in memory and thinking abilities in older adults. We are especially interested in enrolling individuals who are South Asian or East Asian, because little research has focused on brain health in Canadians of diverse racial/ethnic backgrounds.
By participating, you will help us better understand how lifestyle factors are related to memory and thinking changes in adults from diverse communities. We hope that this will lead to improved prevention and early intervention strategies for dementia.
You are eligible to participate if you…
- Are 55-85 years old
- Have no major medical or psychiatric diagnoses
- Are comfortable speaking and reading English
- Are able to undergo an MRI scan
Eligibility is dependent on an additional conversation with the study team.
The aim of this study is to support family and friend caregivers by creating an online community of caregivers called a Virtual Community of Practice. We will create and evaluate a Community of Practice to see if it can improve the quality of life, skills, and confidence of caregivers in engaging persons living with dementia in social and stimulating activities. The Community of Practice includes online information and regular group meetings. Information gathered will help to provide caregiver support by providing them a safe and informative place for them to learn and interact with other caregivers.
Meet the following criteria for Phase 1:
Person living with dementia:
(a) aged 40 years or older with a diagnosis of dementia; and
(b) currently living in Canada.
Family or friend caregiver:
(a) aged 18 years or older and with experience in the last five years providing physical, emotional, and/or psychological support for a family member or friend living with dementia at home or in long-term care;
(b) currently living in Canada
Meet the following criteria for Phase 2:
Family or friend caregiver:
(a) aged 18 years or older and currently providing physical, emotional, and/or psychological support for a family member or friend with dementia at home or in long-term care;
(b) currently providing at least four hours of support a week for a person living with dementia; and
(c) currently living in Canada.
(d) must speak English