The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
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- Observational StudyIn-Person
What is this Study about?
This research study examines how online search result accuracy affects people's evaluation of medical treatments, focusing on older adults with potential digital literacy challenges. Using eye-tracking, screen logging, think-aloud protocols, and interviews, the study explores how search accuracy influences judgment. The goal is to optimize trustworthy health websites and create user-friendly interfaces, enhancing health information literacy among older adults. By analyzing attention patterns, thought processes, and search result interactions, researchers aim to understand how older adults make health-related judgments online. This will inform development of search engines better suited for older adults seeking health information.
Eligibility Criteria
You are eligible to participate if you:
- Are at least 60 years of age
- Are able to speak and understand English well
- Are able to use a computer for basic tasks (can use a mouse and keyboard)
Recruitment End Date
- Observational StudyOnline
What is this Study about?
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
Eligibility Criteria
-Identify as an individual living with dementia
-Identify as a care partner
-Are over the age of 19
-Have posted on social media about living with dementia or being a care partner
-Speak English
Recruitment End Date
- Observational StudyOnline
What is this Study about?
This is the first part of a larger study focused on 50 couples. It builds on the findings of recent scientific studies and will determine if there is a difference in gut bacterial composition due to family history or inherited genetics. Live-in partners will serve as the control group. Participants provide a single saliva sample and a small amount of feces using a simple collection device. Participant-specific genetic information can be returned to participants if desired.
Eligibility Criteria
1. have a parent with Alzheimer's Disease and 2. have a live-in partner who has no family history of cognitive impairment. 3. age 50-75
Recruitment End Date
- Observational StudyIn-Person
What is this Study about?
We aim to explore how gender, social, and sensory factors influence the experiences of people who are living with cognitive decline and their spouses. We will complete a 90-min in-person interview with dyads (people living with cognitive decline and their spouses). Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Results may help identify ways to support the well-being of individuals with cognitive impairment and their spouses, paving the way for future studies.
Eligibility Criteria
Individuals are eligible to participate if the older person or their spouse lives with memory problems, experiences hearing impairment, and if the dyad has ever lived together in the community. Ability to speak English.
Recruitment End Date
- Observational StudyIn-Person & Online
What is this Study about?
Informal caregivers provide much-needed support to friends, family and loved ones suffering from dementia and related conditions who continue to live at home. Smart home technologies allow providers and caregivers to monitor patients while simultaneously aiding with daily tasks such as remembering to take medications. Although smart home technology has become a common intervention with many benefits, there is very little evidence surrounding informal caregivers’ thoughts, perceptions and needs when patients are utilizing this intervention. There is a necessity to gather insights from this user group to increase uptake and proper use.
Eligibility Criteria
- Currently a non-medical caregiver of a dementia patient who is living at home
- Over the age of 19
- Able to read, write and speak English
Exclusion Criteria
- Caregiver of a patient who is institutionalized (e.g. living in care facility)
- Under age of 19
- Health Care Professionals (e.g. care aides, hired help)
Recruitment End Date
- Clinical TrialIn-Person & Online
What is this Study about?
This study is looking for caregivers to take part in a six-week creative movement group program, which aims to improve mental well-being and resilience.
Eligibility Criteria
You are eligible to participate if you: identify as a primary caregiver for a family member (e.g., parent) or partner/spouse living with dementia.
Recruitment End Date
- Observational StudyOnline
What is this Study about?
CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.
Eligibility Criteria
- Age 18 years or older
- Reside in Canada
- Have access to a computer/touchscreen device
- Can provide informed consent
- Do not have a diagnosis of dementia
- Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments
- Ability to speak English
Recruitment End Date
- Clinical TrialOnline & In-Person
What is this Study about?
The Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s Disease (NITE-CAD) team is lifestyle intervention program to support care partners in helping improve sleep in people living with dementia. This program is based on an American program that has been modified to meet the needs of Canadians. The NITE-CAD program takes place over 6-weeks and consists of 1) education and goal setting, 2) self-directed physical activity, and 3) bright light exposure. This study is to help ensure the NITE-CAD program is feasible for future offerings.
Eligibility Criteria
• Care partner to someone living with dementia with sleep difficulties
• Are living with dementia experiencing sleep difficulties, with a live-in care partner who is interested in participating
• Able to speak and understand English
• Have access to the internet and a computer with a camera and microphone
• Able to participate in an exercise program
• Sufficient cognitive function to follow two-step commands.
Recruitment End Date
- Observational StudyOnline
What is this Study about?
Alert systems such as United States’ Silver Alert and Scotland’s Purple Alert support first responders in locating missing persons with dementia. In Canada, provinces are responsible for Silver Alerts. To date, Alberta and Manitoba amended Missing Persons Acts, but have no Silver Alerts. British Columbia has a citizen-led Silver Alert, yet no provincial legislation. This study examines how policies and programs for alert systems are developed and implemented in Canada, Scotland, and the United States. Findings will inform policies and implementation of alert systems to optimize the safety and well-being of people living with dementia at risk of going missing.
Eligibility Criteria
have experience or interest in using Silver Alert to locate missing persons with dementia and are a/an:
• Person living with dementia
• Care partner
• Alzheimer Society staff
• First responder
• Service provider
• Technology developer
• Policy maker
Recruitment End Date
Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor
Toronto, Ontario M4R 1K8
Information and Referral Line: 1-855-705-4636
Email: [email protected]
Charity registration number: 11878 4925 RR0001
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