To examine the effects of a stress management program on well-being, stress, and cognition in family caregivers of someone with dementia or a related neurodegenerative disorder. We will be recruiting participants from 2023 - 2027.
- are a primary family caregiver of a person with dementia or a related neurodegenerative disorder.
- have access to a computer with high-speed internet; and feel comfortable using email and Zoom (a secure online meeting platform).
- have a video camera on your device. To ensure safety of participants during the program sessions, it is important that participants turn on their video camera. Keeping the video camera on is also important to build trust within the group sessions and when interacting with the researchers.
- are willing to be randomised to one of 3 groups, even if it is not your preferred group.
- are able to commit to a synchronous 8-week online group-based program (described below) and complete daily prescribed daily home practices.
- are able to commit to three assessment sessions: one baseline assessment, one post-program assessment, one 12-month follow-up assessment.
- agree to audio recording of interview sessions and portions of the assessment that require accurate verbal data collection.
- are able to provide blood samples, potentially after a 12-hour fast.
- are able to travel to a LifeLabs clinic for biomarker collection.
- agree to refrain from participating in new studies or programs during the 8-week study session.
- meet the screening criteria during the pre-screening interview.
- ability to speak English.
Researchers at the University of Waterloo are looking for individuals to participate in a research study that explores the perceptions of dementia and health-seeking behaviour amongst Arab care partners in Ontario. This study aims to understand how dementia is perceived by Arab care partners and the use of dementia-related health services and community support services.
Sharing your experience will help us to understand 1) how dementia is perceived by Arab care partners and 2) the use of dementia-related health services and community support services.
We are looking for individuals who:
1. Are from the Arab community AND
2. Are a family member who cares or has cared for a person living with dementia OR Are a family member who cares or has cared for a person with memory challenges
Interviews can be conducted in Arabic or English based on the participants' preference
Our overall goal is to improve the surgical experience for older adults with cognitive decline, including people with Alzheimer's and related dementias, their families, and caregivers.
The aim of this study is to understand and describe the experiences of patients, families, and healthcare providers with postoperative delirium (delirium after surgery), and to identify strategies to support patient and family centered care for patients with postoperative delirium. We will conduct interviews with patients, families, and healthcare providers to describe their experiences with postoperative delirium.
Our findings will be used to inform the development of a strategy for reducing delirium after surgery.
1) are a patient aged over 65 years who has experienced postoperative delirium (delirium after surgery), or
2) are a caregiver/family member of a person who has experienced postoperative delirium (delirium after surgery)
Ability to speak English
DELIGHT (DEmentia Lifestyle Intervention for Getting Healthy Together) is a multi-component, group-based healthy lifestyle program for persons living with dementia and family care partners. It aims to improve health behaviours of participants, and reduce the progression of dementia-related impairments and improve physical, social, and mental wellbeing of persons living with dementia and care partners. Following an initial test of the program at the University of Waterloo, the focus of this stage of the project is to work together with community members to adapt the program more diverse contexts, including diverse community centers, rural settings and community groups supporting people of linguistic/ethno-cultural minorities.
Are a person living with dementia, memory problems, mild cognitive impairment or care partners, and community service providers and healthcare professionals in Canadian communities.
Ability to speak English.
This qualitative study will examine family experiences of engaging in nutritional care with residents living with dementia in long-term care in Saskatchewan. We will use individual interviews with family caregivers to articulate what enhances or detracts from mealtime experiences for families living with dementia in long-term care, what supports are needed to engage families meaningfully at mealtimes, and what supports are needed to enable family involvement in a resident's nutritional care into later stages of dementia.
- 18 years of age or older
- able to understand, speak, and read English
- identify as the family caregiver of a person living with dementia who resides or resided in a Saskatchewan long-term care home in the past three years
- are or were involved in mealtimes as part of your caregiving role
- are at least three months bereaved (if applicable)
This qualitative study investigates the intersection of family-provided care and care provided in health care facilities (e.g., hospitals). Focus areas include family influence of care and family involvement in developing goals of care. Data is gathered via qualitative interviews and is analyzed using techniques to categorize the data to develop descriptions of family-provided care and its intersection with the health system.
Participants will take part in individual or family interviews (in-person or online). Eligible participants are adults who have a family member with dementia who resides in Manitoba (family members may live in other jurisdictions). Each person may take part in 1-3 interviews (approximately 60 minutes each in length); the number of interviews will depend on participant interest and how much description they wish to provide. Participants will receive a $25 gift card for a local coffee shop or grocery store to compensate them for each interview they participate in.
Participants will sign letters of consent approved by the Canadian Mennonite University Research Ethics Board. Data will be treated confidentially, and privacy is of the utmost importance. Participants will be given pseudonyms and all identifying features will be removed from the interview transcripts. Data will be kept in the password protected computer of the principal investigator for up to seven years (destroyed by deleting all electronic files and shredding any paper documents).
You are eligible to participate if you are an adult family member of a person living with dementia who resides in Manitoba (family members may live in other locations). You are also eligible to participate if your family member with dementia has died within the past year.
The aim of this thesis project is to explore how technologies can be designed to allow People with Dementia to continue to follow their rituals in everyday activities. The research question being explored is how can habits and rituals be incorporated in the design of assistive technologies for community dwelling older adults living with dementia or mild cognitive impairment? The purpose of this project is to understand rituals and habits associated with everyday activities. The semi-structured interviews will be conducted with people with dementia and their caregivers in dyads while they engage in everyday activities. The synthesis of the results will identify objects, social, cultural, and other personal aspects that inform rituals and thus engagement with activities. It will also identify rituals that have been adapted due to impairments of dementia.
You are an older adult aged 50+ living with dementia and/or their caregiver
The phased progressive research program aims to address the two objectives using the Double Diamond process over two years. During the Discover phase, evidence acquired through an environmental scan and key informant interviews will be used to map dementia care pathways, components, and contextual factors. The synthesized evidence review will support the Define phase, comprising stakeholder engagement to define and refine the problem. A prototype of a dementia care pathway will be created during the Develop phase. The defining and development stages will consist of World Café workshops. The World Café approach is designed to be as inclusionary as possible and is well suited to creating actionable outcomes with large groups of participants, all of whom are regarded as experts of their own lived experience. Evidence in the literature supports the use of World Cafés with people living with dementia and care partners. The Deliver phase will comprise the integrated knowledge translation strategy of the research program
You are eligible to participate if you are living with dementia or MCI or caring for someone living with dementia or MCI
This study investigates the support needs and experiences of the family and friend caregivers of long-term care residents through an online questionnaire.
You are eligible to participate if you live in Canada, are over 18 years old, and have been providing unpaid care to a long-term care resident for at least 1 month.