Culture change towards person-centred care
What is person-centred care?
Person-centred care is a philosophy that recognizes that individuals have unique values, personal history and personality and that each person has an equal right to dignity, respect, and to participate fully in their environment.
The ultimate goal of person-centred care is to create partnerships among care home staff, people with dementia and their families, to enhance the quality of life and the quality of care of people with the disease. Services and supports are designed and delivered in a way that is integrated, collaborative, and mutually respectful of all persons involved.
Person-centred care in long-term care homes
Most people with dementia want to live in their own homes for as long as possible. The reality is that many will move to a long-term care home.
In fact, 62% of seniors living in a residential care home have a diagnosis of Alzheimer’s disease and/or other dementia, and 70% of all individuals diagnosed with dementia will die in a long-term care home.
Long-term care homes have been traditionally designed like extensions of hospitals, based on a medical model, focusing on tasks and the needs of the organization rather than the needs of the residents and their families.
While our culture change initiative focuses on working with others to improve the experiences of people with dementia living in long-term care homes, the process and outcomes of this work are relevant to conversations about quality of life at all stages of the disease and throughout the healthcare continuum.
A patient’s experience in dementia care: Using the “lived experience” to improve care, article by Dr Christopher Frank and Rev Faye Forbes, The College of Family Physicians of Canada
Fighting for Dignity: Prevention of Harmful Resident-to-Resident Interactions in Dementia in LTC, a webinar presented by brainXchange
Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial. Evidence for improved outcomes for people with dementia through provision of person-centred care and dementia-care mapping is largely observational. This study aimed to do a large, randomised comparison of person-centred care, dementia-care mapping, and usual care.
Reimagining Long Term Residential Care: Ideas Worth Sharing, a webinar presented by brainXchange featuring: Dr. Pat Armstrong, PhD, FRSC. The studies of 25 different long-term residential care facilities provide ideas big and small that are worth thinking about in terms of how they could work in Canada.
“It Takes the Loneliness Away”: An Introduction to Innovative Peer Support Programming (Part 1), a webinar presented by brainXchange featuring: Kristine Theurer PhD (c) and Sharron Cooke, OARC. How to put peer support into practice with those living with dementia in a way that has worked for many organizations. This includes long-term care, assisted living, retirement and adult day settings.