The Advisory Group of people living with dementia

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The Alzheimer Society of Canada believes people with dementia should have a voice in the work that impacts them. We want to bring people from all over the country together to be part of the conversation by becoming a member of our Advisory Group.

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The Position

We need people with dementia to work with us, to ensure that the work we do supports you. Our national platform will give you the chance to reflect your experience living with dementia to fight stigma, by influencing what research we fund, guiding the education material we develop and advocating directly to the federal government.

Your voice, combined with others across the country, can make the difference that erases the daily stigma felt by thousands of Canadians.

Meet our Advisory Group

Requirements

The only requirement is having a diagnosis of dementia. Every type of dementia is important – and we need to hear from you. Examples of dementia include:

  • Alzheimer’s disease
  • Young-onset dementia
  • Vascular dementia
  • Mixed dementia
  • Frontotemporal dementia
  • Dementia with Lewy bodies

The above are just some examples. There are many types of dementias, so please consider lending us your voice and experience.

It doesn’t matter if you’ve just been diagnosed, or if you’ve been living with dementia for a decade or longer. Your voice is essential, and we want it to be in this conversation.

The Advisory Group will aim to reflect the diversity of people living in Canada. Both in terms of gender, sexuality and ethnicity, and the range of experiences living with dementia brings.

We are also asking for caregivers of people with dementia to join us in a sub-group so their experiences as supporters and carers can advise our work, too. Whether you’re a current or former caregiver, we need to hear from you.

Ways to get involved & how it works

The Alzheimer Society of Canada has several ways you can be involved in our work, including:

  • Advising on our strategic direction
  • Reviewing educational materials for relevancy to your lived experience
  • Supporting our Research Program to review, and learn about, dementia research
  • Being a spokesperson for various initiatives to erase stigma
  • Advocating for the Alzheimer Society and dementia needs at the federal level

You can decide which activities to take part in as they come up – you do not have to commit to anything yet! Once you sign up, we will inform you of any opportunities as they occur.

Members will meet virtually a handful of times a year, depending on how active you choose to be. At these meetings, all you’ll be asked is to provide your own views on different topics based on your personal experience. That’s it!

How to sign up to the Advisory Group

It’s simple! Just click here and provide your details.

Once registered, we will send you a welcome email and add you to our mailing list. We will let you know of any upcoming meetings, webinars or opportunities you can choose to join.

If you’d like to find out more, speak to a member of the Alzheimer Society of Canada by emailing [email protected].

Meaningful engagement of people living with dementia

Meaningful engagement is a person-centred approach that encourages and invites people living with dementia to participate in an organization's work with purpose and interest. By practicing meaningful engagement, you can benefit from people living with dementia becoming more involved in your organization.

Learn more
Meaningful engagement of people with dementia.

Race and dementia

At the Alzheimer Society of Canada, we work to change the lives of those living with dementia. However, we need to do more to combat systemic oppression. Here is how we are changing.

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We're changing how we see, discuss and learn about race and dementia in Canada.