Privacy & personal health information


The Alzheimer Society of Niagara Region takes the privacy of our clients seriously. We comply with all PHIPA regulations. On this page you can learn more about your rights in relation to your personal health information.

Paper medical files

What is personal health information?

Personal Health Information (PHI) is recorded information about a person, including demographic and assessment information related to physical and mental health status, personal and family health history.

Why is my personal health information collected?

As ‘health care custodians’ we collect your health information for the purpose of providing you with our services. Unless you, or an authorized person acting on your behalf tells us not to, we will use this information to develop a service or care-plan with you and to coordinate care amongst other health service providers involved.

Collection, Use & Disclosure of Personal Health Information

Your request for care from us implies consent for our collection, use, and disclosure of your personal health information for the following purposes:

  • to provide and assist in the provision of health care to you through our services, programs, and facilities;
  • to plan, administer, and manage the operation of our services, programs, and facilities;
  • to manage risk and improve the quality and safety of our services and programs;
  • to educate or train our agents to provide health care;
  • to comply with legal and regulatory requirements; and,
  • to fulfill other purposes that are permitted or required by law.

We primarily collect personal health information about you directly from you through our intake and assessment process. We collect only the minimum amount of information required to provide you with our services and coordinate care. At times, we may ask for information from a person close to you (e.g. family member) where it is relevant or appropriate, but we only do so if we have your consent.

From time to time, we may communicate about your care with your other health care providers, including collecting, using, and disclosing your personal health information through electronic medical information systems (sometimes called electronic health records, eHealth records, electronic medical records, etc.). If you would like more information about the electronic medical information systems we use, please speak with our Privacy Officer.

Any uses of your personal health information other than those mentioned above would require your express consent, for example speaking with your family or friends.

How do we protect your privacy?

We handle and protect your personal health information in accordance with Ontario’s Personal Health Information Protection Act, 2004 (PHIPA) and any other laws that we are required to follow. We provide training, follow established policies, and take other steps to ensure that our staff and anyone else acting on our behalf protects your privacy.

We also take every reasonable step to ensure that information is protected from theft, loss and unauthorized use or disclosure. Records of personal health information are retained, transferred and disposed of in a secure manner and are reasonably protected against unauthorized copying, modification or disposal.

Your rights and choices

PHIPA provides you with certain rights related to your personal health information under our custody or control. Please communicate with our Privacy Officer for more information related to your rights:

  • to see and get a copy of your personal health information;
  • to ask us to make corrections to inaccurate or incomplete personal health information;
  • to withdraw your consent to our collection and use of your personal health information or its disclosure to other health care providers (subject to certain legal obligations); and,
  • to be informed if your personal health information is lost, stolen or improperly accessed.

You have the right to withhold or withdraw your consent at any time to the collection, use or disclose of your personal health in- formation. This decision will not impact the services you receive from the Alzheimer Society of Niagara Region.

You can communicate your wishes directly to us through your Family Support Counsellor or our Privacy Officer.

Please note that we may share personal health information without your consent if we have reasonable grounds to believe that the disclosure is necessary to eliminate or reduce a significant risk of serious bodily harm to you or others, or in situations where we are legally required to do so.


Where can I get more information?

To learn more about how personal health information is handled and shared with other Health Service Providers, contact the Privacy Officer at the Alzheimer Society of Niagara Region.

Privacy related contacts

For more information or to raise a concern about our privacy practices, please contact our Privacy Officer:

David Angus, Privacy Officer
Alzheimer Society of Niagara Region

1-403 Ontario St.
St. Catharines, Ontario L2N 1L5

Ph: 905-687-6856 ext. 537
Email: [email protected]

The Information and Privacy Commissioner of Ontario is responsible for making sure that privacy law is followed in Ontario. For more information about your privacy rights, or if you are unable to resolve an issue directly with our Privacy Officer and wish to make a complaint, contact:

Information & Privacy Commissioner of Ontario

2 Bloor Street East, Suite 1400
Toronto, Ontario M4W 1A8
Ph: (416) 326-3333 • 1-800-387-0073
Email: [email protected]
TTY: (416) 325-7539 • Website:

Consent and Capacity Board

Greater Toronto Area

151 Bloor St. W., 10th Floor
Toronto, Ontario M5S 2T5
Ph: 416- 327- 4142 • TTY: 416-326- 7889
Fax 416-924- 8873 • Website: Outside Greater Toronto Area
1-866-777- 7391 • TTY: 1-877-301-OTTY


Programs and services

The Alzheimer Society of Niagara Region understands the challenges and emotions one encounters with a dementia diagnosis. We offer many programs and services to support the individual living with dementia, care partners, friends, family and educational services for professionals and the general public.

Learn more
Older couple walking hand in hand