Participating in research
Scientists around the world are working to find the causes, better treatments and, ultimately, a cure for Alzheimer’s and other dementias. Researchers are also trying to better understand the psychological and social effects of the disease on individuals and families.
Many people with Alzheimer’s disease and other dementias are participating in this research. They and their families take comfort and find hope in being able to help increase our understanding of the disease and its effects.
This page contains information for people to consider when thinking about participating in research. It also includes information on how you can find out about studies that are looking for participants.
Links to studies looking for participants
The following links provide information about studies currently recruiting participants from British Columbia:
- Daily Experiences of Affect, Stress and Health (DASH Study, University of Victoria, Recruiting until December 2019)
- Putting Social Citizenship into Action (UBC, SFU, Lakehead University, CIHR)
- Clinical Data and Natural Language Processing for Early Detection of Dementia (CANARY) (University of British Columbia)
- Medium Chain Triglyceride Intervention for Alzheimer Disease (A MINT for AD) (University of British Columbia)
- Shared Decision Making about Living Well with Dementia to the End of Life (University of British Columbia)
- Nutrition and Physical Activity Survey (University of Waterloo, Online study)
- Possible Benefits of Familiar Music or Familiar Poetry and/or Stories for Adults Experiencing Some Cognitive Decline (University of British Columbia)
- Dogs for People with Dementia (University Laval, Phone study, Recruiting until April 2020)
- Exploring Health Care and Personal Care Decision-Making under Representation Agreements: the Lived Experiences of
- Representatives' of Older Adults with Dementia (Simon Fraser University)
- Alzheimer Society Research Portal
- Vancouver Coastal Health Research Institute
- Health Canada's clinical trial database
- ClinicalTrials.gov (includes trials from all around the world)
- The Consortium of Canadian Centres for Clinical Cognitive Research (C5R)
- Your local hospital or health science centre
- Your health-care providers (e.g., family physician)
Where to start
The level of commitment required for participating in a study can vary from filling out a simple survey online to more long-term, in-depth involvement in a study or clinical trial.
Consider the following when thinking about participating in research:
- Participation in research (Alzheimer Society of Canada) (PDF)
- Checklist for participating in research (Alzheimer Society of Canada) (PDF)
- How drugs are approved in Canada (Alzheimer Society of Canada) (PDF)
- Getting involved in clinical trials (Alzheimer’s Disease International) (PDF)