COVID-19 and the Alzheimer Society of PEI’s response.

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Alzheimer Society of PEI
166 Fitzroy Street
Charlottetown, Prince Edward Island C1A 1S1

Phone:902-628-2257

Email:[email protected]

Provincial Societies:

902-628-2257

902-628-2257

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About dementia
- What is dementia?
  - What is dementia?The term "dementia" doesn't actually refer to one, specific disease. Rather, it's an overall term for a set of symptoms that are caused by disorders affecting the brain.
  - Common questions about dementiaGet the answers to the most common questions about dementia.
  - Dementia numbers in CanadaThe Alzheimer Society is committed to providing accurate and reliable data on dementia in Canada. Statistics listed on this page are the most current available and are updated periodically when new reports and studies are issued.
- What is Alzheimer's disease?
  - What is Alzheimer's disease?Alzheimer's disease is a chronic neurodegenerative disease that destroys brain cells, causing thinking ability and memory to deteriorate over time. Alzheimer's disease is not a normal part of aging, and is irreversible.
  - The history behind Alzheimer's diseaseWhile Alzheimer's has always been with us, attempts to understand and identify the disease and its impact didn't come about until very recently in human history.
  - The difference between Alzheimer's disease and other dementiaAlzheimer's disease and dementia do not mean the same thing. Understand the difference on this page.
  - How Alzheimer's disease changes the brainAlzheimer's disease can change the brain in many different ways, On this page, read about some of the changes you may expect as the disease progresses.
  - The stages of Alzheimer's diseaseAlzheimer's disease is usually described in terms of stages, indicating the severity of the symptoms. Learn about the stages on this page, from early stage to end of life.
  - Genetic testing and Alzheimer's diseaseGenetic testing can sometimes help identify whether a person has a high or low chance of developing Alzheimer's disease. On this page, find out more about genetic testing for Alzheimer's and whether it applies to you.
- Other types of dementia
  - Other types of dementiaWhile Alzheimer's disease is the most common type of dementia, there are other types as well. Learn about them here.
  - LATE-NCLimbic-predominant age-related TDP-43 encephalopathy (or LATE-NC) is the most recently identified form of dementia, noted for its close similarity to Alzheimer’s.
  - Dementia with Lewy bodiesDementia with Lewy bodies – caused by abnormal 'Lewy bodies' deposits of protein called alpha-synuclein inside of the brain's nerve cells – shares many similarities with Parkinson’s disease.
  - Frontotemporal dementiaFrontotemporal dementia is an umbrella term for a group of rare disorders that primarily affect the areas of the brain associated with personality and behaviour.
  - Mixed dementiaIt's possible for someone to have more than one type of dementia. When this happens, it's known as mixed dementia.
  - Vascular dementiaThe most common type of dementia after Alzheimer's disease, vascular dementia occurs when the brain’s blood supply is blocked or damaged, causing brain cells to be deprived of oxygen and die.
  - Young-onset dementiaWhen symptoms of dementia start before the age of 65, we use the term "young onset dementia."
  - Rare types of dementiaThere are many conditions that, in rare cases, can lead to dementia. Learn about them in this section.
  - Conditions related to dementiaLearn about conditions similar to dementia in this section.
- Do I have dementia?
  - Do I have dementia?If you're unsure whether you have dementia, this section will help you. Get answers to common questions. Recognize what's a warning sign and what's part of normal aging. Know when it may be time to seek a diagnosis.
  - The 10 warning signs of dementiaWhether you’re concerned for yourself or someone you care about, it's important to know the warning signs of dementia so you can ensure an early diagnosis. Here are 10 of the most common warning signs for dementia.
  - The differences between normal aging and dementiaIf you are experiencing difficulties with memory, know that they may not be signs of dementia. It could be memory loss as a part of normal aging.
  - How to get tested for dementiaIf you or someone you know is concerned about having dementia, it’s important that you can identify the warning signs, know when to talk to your doctor and understand how dementia is diagnosed. Follow these steps.
  - How can I prevent dementia?The most effective way to prevent Alzheimer's disease and other dementias is to minimize the risk factors and make healthy lifestyle choices that benefit both your body and brain.
  - How can I treat dementia?There are currently no treatments that can reverse cognitive decline brought on by dementia. However, there are approaches you can take that can help you fight symptoms and maintain your quality of life for as long as possible.
  - Stigma against dementiaStigma is one of the biggest barriers for people living with dementia to live fully with dignity and respect. Help us fight stigma by learning more about its effects and taking steps to reduce its impact.
- About dementiaIn this section, learn more about dementia, including its most common type (Alzheimer's disease), other types of dementia and evidence-based recommendations on preventing and treating the disease.
Help and Support
- COVID-19 and the Society’s response
- Programs and services
  - Programs and servicesThe Alzheimer Society of Prince Edward Island can help you by providing information, resources, education, support and counselling. Use this page as your guide to find the care and support you may need.
  - Brain Fitness FunBrain Fitness Fun is a community-based fitness program for older adults and those with dementia designed to improve brain health through physical activity, brain games and social interaction.
  - Find support in PEILiving with Alzheimer's disease or related dementia can be incredibly demanding and isolating for those with the disease and their care partners. Find information and support in Prince Edward Island.
  - First Link^® Education SeriesThe First Link Education Series is a four-module series for caregivers and family members who are caring for a person with dementia.
  - First Link^®First Link® is an innovative referral program designed to assist individuals diagnosed with Alzheimer's disease and other dementias, as well as their families and care partners.
  - Information and referral in PEIFor more information about programs happening in your area or referrals, contact our office.
  - Volunteer Companion ProgramThe Volunteer Companion Program is a one-on-one visiting program for individuals with Alzheimer’s disease or related dementia.
  - Minds in Motion^®Minds in Motion® is a community-based social program that incorporates physical and mental stimulation for people with early to mid-stage dementia and their care partners.
  - Dementia Care TrainingLearn a positive approach to dementia care.
  - MedicAlert^® Safely Home^®
  - Dementia resources in PEIThe Alzheimer Society of PEI offers resources for people with dementia, caregivers, family members and healthcare providers.
  - Dementia resources for teachersThe Alzheimer Society of Prince Edward Island remains passionate to find resources for teachers to assist in introducing the topic of Alzheimer’s disease and other dementias, to elementary-aged students.
- I'm living with dementia
  - I'm living with dementiaOur mission is to support you. The Alzheimer Society can provide you with the information and resources to help you manage your diagnosis, assert your rights, live well with dementia, plan for your future and more.
  - First steps after diagnosisYou've likely been worried and anxious about the changes you're seeing in yourself. Now that you've been diagnosed, know that there are education and resources to support you. Learn the first steps to living well with dementia.
  - Talking about your diagnosisIf you've just been diagnosed with dementia, you may need some time before sharing the news – or you may want to talk about it right away. However your approach, this page can help you with strategies for communication.
  - Managing the changes in your abilitiesDementia impacts your cognitive, emotional, physical and social abilities. Understand how these changes can affect you, and know how you can prepare and adjust accordingly to live well with dementia.
  - Living well with dementiaA diagnosis of dementia does not mean your life is over. This section provides you with strategies to live well with dementia, along with tips and advice from other people who are living with dementia.
  - Planning for your futureAs your dementia progresses, it can become difficult to make choices about your care, finances and other important decisions. However, there are a number of things you can do now to ensure your wishes are communicated, heard and respected.
- I'm caring for a person living with dementia
  - I'm caring for a person living with dementiaUnderstanding dementia and its progression is vital to ensure that both you and the person with dementia can live as well as possible. We have the resources to support you and your care of the person living with dementia.
  - What to expect as the person's dementia progressesCaring for someone with dementia can be a great reward but it can be challenging at times. Prepare yourself by knowing what to expect.
  - Looking after yourselfProviding care for someone living with dementia takes a tremendous toll on the physical and emotional health of the primary caregiver, yet many caregivers often don't recognize the warning signs, or deny its effects on their health.
  - Understanding symptomsDementia can affect the personality and behaviour of the person living with the disease. Learn more about understanding and responding to these changes associated with dementia.
  - Providing day-to-day careYou want to make every day the best day possible. Caring for someone with dementia can be a great reward but it can be challenging at times. Prepare yourself with these tips.
  - Ensuring safety and securityDementia can affect a person’s physical abilities and mental acuity. Learn more about protecting yourself or a family member who has dementia.
  - Long distance caregivingToday, family members often live at some distance from each other. When a relative needs increasing support, caring from a distance presents additional and special problems.
  - Long-term careWhen a person living with dementia needs full time support, moving to a long-term care home may be the next step for you and your family.
  - End-of-life careThe needs of people with dementia at the end of life are unique and require special considerations. This section can help you prepare for end of life, make some of the difficult decisions you may face, and cope with the grief and loss you might experience
- I have a friend or family member who lives with dementia
  - I have a friend or family member who lives with dementiaSomeone you know – a parent, a sibling, a friend, a coworker – has dementia. What can you do to help? Learn more about dementia and how you can be dementia-friendly.
  - First steps for families after diagnosisKnowing the following tips may help make life easier and more enjoyable for you and the person living with dementia as well as to prepare for the future.
  - Understanding how your relationship may changeDementia can change many aspects of a relationship, but not the need for love and affection.
  - Communicating with people living with dementiaUnderstand how dementia affects communication, and learn some useful strategies to help communication throughout the progression of the disease.
  - Ways to helpFriends, neighbours and extended family are important sources of support for the family. Perhaps you want to help but don't know where to begin. This page will give you some ideas of how you can offer practical help and show that you care.
  - Managing ambiguous loss and griefThe issue of loss and grief is one of the most significant issues when supporting people living with dementia and their caregivers. Losses and grieving occur in different ways at all stages in the dementia caregiving journey.
  - Making meaningful visitsWhether you are visiting someone with dementia every day or just once in a while, making the most of your time together will mean a more meaningful visit for both of you!
  - Helping children understand dementiaDementia can be a hard concept for younger children to understand.
  - Helping teens understand dementiaThis page can help you give teenagers information they can use to understand what's happening.
  - Holidays and special occasionsFor some of us, holidays or other special life events can be stressful, particularly if you are a caregiver or a person living with dementia. Unfamiliar places, large groups of people, noise and a hectic pace can create a lot of anxiety.
- I'm a healthcare provider
  - I'm a healthcare providerLearn more about dementia and how you can ensure quality person-centred care for people living with the disease.
  - Providing person-centred careFostering a person-centred approach to care will improve the quality of care for people with dementia and their families.
  - Person-centred care of people with dementia living in care homesThe Alzheimer Society of Canada looked for evidence-based research that shows how to successfully implement person-centred programs and practices in long-term care homes. Here is the result.
  - Diagnosis and screeningTools for healthcare professionals to support dementia screening, assessment, and early diagnosis.
  - Making a referral with First Link®Find out how you can use First Link® to refer a person newly diagnosed with dementia to their local Alzheimer Society, connecting them to help and support in their community.
  - Addressing ambiguous loss and grief as a healthcare providerPractical resources to help healthcare professionals understand loss and grief associated with dementia.
  - Professional developmentA selection of training and e-learning modules as well as useful resources.
  - Other resources and tools for healthcare providersGet resources on driving, pain, dementia research, self-management, long-term care and more.
- I'm a first responder
- I'm a financial professional
- Dementia resources
  - Dementia resourcesLooking for more information on dementia? Get brochures, videos, our recommendations for assistive products and more.
  - National resource libraryBrowse our resource library to learn more about dementia. We cover a wide range of topics and audiences.
  - Information in other languagesThe Alzheimer Society of Canada presents all its information in English and French. The links here provide information about Alzheimer’s disease and other dementias in other languages.
  - Managing through COVID-19
  - Shopping for assistive productsAssistive devices can help individuals perform a task that they might otherwise be unable to do, or simply make the task easier and safer to perform.
  - Video resourcesThese videos can help you understand more about dementia, know what to expect and how to provide dementia care.
- Help and SupportWhether you want to learn more about the programs and services we offer, or find dementia-related information specific to your needs, the Alzheimer Society has the education and resources to help you.
Take action
- Become a member
- Donate
  - DonateYour donation today will help us bring services and support to people with dementia and their caregivers across the Island.
  - Leave a legacyLeave a legacy and plan a charitable gift to provide the greatest benefit to you, your family and the Alzheimer Society.
- Fundraise and participate
  - Fundraise and participateWe would love your participation in any one of our signature events and fundraisers. Stay tuned for the latest information on our events, photos and updates.
  - Anything for Alzheimer'sThe Alzheimer Society of Prince Edwards Island's fundraising program, Anything for Alzheimer's, helps you plan an event or turn an existing event into a fundraiser to support the Society and people affected by dementia in our province.
  - Create your own eventThroughout the year, the Alzheimer Society of Prince Edward Island holds various signature events to support the programs & services we offer as well as to fund research for a cause and cure.
  - Door to Door CampaignSupport our Door to Door Campaign and contribute to important programs and services that help people in our province, as well as crucial research initiatives.
  - Forget Me Not WeekIf you’re a student attending university or college in Prince Edward Island, join us for Forget Me Not Week in January!
  - IG Wealth Management Walk for Alzheimer'sWhen you participate in the IG Wealth Management Walk for Alzheimer's, you join thousands of Canadians who want to see a world without Alzheimer’s disease and other dementias.
  - Social with a PurposeSocial with a Purpose is the newest virtual initiative of 2020. Social with a purpose is a do-it-yourself fundraiser that promotes the importance of socializing, staying in touch, and building strong, positive relationships with your friends, family, and
- Volunteer
- Change minds
  - Change mindsLearn how you can help us raise awareness and fight stigma against dementia in Canada.
  - #Let’s Talk MemoryLet’s Talk Memory is a local campaign featuring stories about Islanders and educational information designed to increase awareness of the risk factors and warning signs of dementia.
  - Dementia Journey SurveyThe Alzheimer Society of Canada, in partnership with the College of Family Physicians of Canada, is asking you to participate in this 20-minute survey to help us understand your experience with the care you receive from your family physician.
  - Advocacy in PEIThe Alzheimer Society of PEI raises awareness about the issues and concerns that matter to all Islanders affected by Alzheimer’s disease and other dementias. Join our advocacy network.
  - Alzheimer's Awareness MonthJanuary is Alzheimer's Awareness Month in Canada. Learn what that means and how you can get involved.
  - Canada's national dementia strategyLearn more about Canada's first ever-national dementia strategy and the importance of having it fully funded.
  - The Canadian Charter of Rights for People with DementiaAs a person living with dementia, the Charter can help you assert your rights to live free of stigma, benefit from all of Canada's civic and legal rights, participate in policies that affect you and more.
- Become dementia-friendly
  - Become dementia-friendlyBy understanding the everyday experiences of people living with dementia, you can better accommodate their needs and help them live well. Becoming dementia-friendly will make a direct impact on the people living with dementia in your community.
  - Dementia-Friendly CanadaBy the end of the decade, almost one million Canadians will live with dementia. The impact of dementia is and will continue to be felt across all borders, sectors and cultures. We must act and build a dementia-friendly Canada now.
  - Meaningful engagement of people living with dementiaMeaningful engagement is a person-centred approach that encourages and invites people living with dementia to participate in an organization's work with purpose and interest. By practicing meaningful engagement, you can benefit from people living with dem
  - Using person-centred languageThe Alzheimer Society has developed language guidelines for anyone who lives with, supports, or works with a person living with dementia or caregiver. These guidelines can help you promote consistent, respectful language around dementia.
- Share your experiences
- Take actionOur vision is a world without Alzheimer’s disease and other dementias and we are working hard each and every day to support that vision.
Research
- Alzheimer Society of PEI Research Award
- The Alzheimer Society Research Program
  - The Alzheimer Society Research ProgramOn this page, learn more about the Alzheimer Society Research Program, including funding opportunities for researchers, when applications open and highlights from previous ASRP funded research.
  - Latest funding resultsWe're pleased to announce the following 2020 grants and awards for the Alzheimer Society Research Program, funding Canadian researchers in the field of Alzheimer's disease and other dementias, in the following areas of research.
  - Funding results historySee the past ASRP-funded projects that advanced dementia research in Canada, sorted by year.
- 10 priorities for dementia research in Canada
- Meet our researchers
- Participate in research
- Information for researchers
  - Information for researchersAre you a researcher currently funded by the Alzheimer Society Research Program, or interested in applying? Get all the information and resources you need in this section.
  - Apply to the Alzheimer Society Research ProgramInterested in applying to the latest ASRP Research Competition? On this page, learn what to know before applying, when to apply and get answers to frequently asked questions about submissions, awards and grants.
  - How ASRP funding gets determinedIn 2020, the Alzheimer Society Research Program received over 200 applications. Understand the process that determines which research projects among the final applicants receive funding.
  - Find participants for your studyThrough the Alzheimer Society Research Portal, you can get connected to people living in Canada who want to do their part in advancing dementia research – and want to participate in a study like yours!
  - Report forms for currently funded researchersFill out and submit your progress and final reports, as well as your conference evaluation form.
- Latest research news
- Reports on dementia
- ResearchResearch moves us forward. Your support will get us closer to life-altering treatments, better care and cures for Alzheimer's disease and other dementias.
What's happening
- What's happeningGet the latest news about dementia, read the stories of people with lived experience and find out about events happening across Canada and near you.
About us
- About usThe Alzheimer Society of PEI staff comprises of a team of caring and dedicated professionals committed to fulfilling our vision of a world without Alzheimer’s disease and other dementias.

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Dementia Resources in PEI

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The Alzheimer Society of PEI offers resources for people with dementia, caregivers, family members and healthcare providers. Below is a listing of our most up to date resources.

A Directory of Services for Individuals and Families Affected by Alzheimer's Disease and Other Dementias (.docx)

This resource directory aims to provide information on the available community resources for people living with dementia and their caregivers in Prince Edward Island. Our best effort has been made to ensure that the information contained in this resource directory is accurate and up-to-date at the time of publication.

Clicking on the image to the left or the link above will download the resource directory to your computer as a .docx file.

Alzheimer Society of PEI Resource directory 2019 cover.

Programs & services

MedicAlert® Safely Home®
First Link®
Programs and services

Healthy living

Heads up for healthier living
Heads up for healthier brains
Brain Boosters

Risk factors and genetics

Risk factors
Understanding Genetics and Alzheimer’s Disease

Diagnosis

Benefits of an early diagnosis
How do I get My Relative Diagnosed
Getting a diagnosis
Preparing for your doctor's visit
Principles for a dignified diagnosis

Alzheimer's disease

What is Alzheimer's disease?
Dispelling the myths
10 warning signs
Memory Loss
What to expect
First steps

Progression

Overview
Early Stage
Middle Stage
Late Stage
End of Life

Other types of dementia

Corticobasal degeneration
Creutzfeldt-Jakob disease
Down syndrome and Alzheimer's disease
Frontotemporal / Pick's dementia
Huntington’s disease
Lewy body dementia
Mild Cognitive Impairment
Multiple sclerosis
Niemann-Pick disease type C
Normal pressure hydrocephalus
Parkinson’s disease
Posterior cortical atrophy
Progressive supranuclear palsy
Traumatic brain injury
Vascular dementia
Wernicke-Korsakoff syndrome

Caring for someone with dementia

First steps for families
Ways to help
How to Engage a Person with Dementia
Caregiving options
Care Planning Checklist for Caregivers
The Caregiving Role
Maintaining Relationships
When families do not agree
Preparing for in-home help and support
Behaviours: Understanding Changes
Shifting Focus: A Guide to Understanding Dementia Behavior
A Handbook for Care
Dementia and Responsive Behaviours

Caring for the caregiver

Care for the Caregiver
Taking a Break
Reducing caregiver stress
Ambiguous loss and grief in dementia for individuals and families
Grief Related to Caregiving

Person-centred care

PC P.E.A.R.L.S.: 7 key elements of person-centred care
Guidelines for care: executive summary
Guidelines for care: framework
Person-centred language guidelines

For healthcare providers

Importance of early diagnosis
Questions for family physicians and health professionals to ask when cognitive impairment is suspected
Principles for a dignified diagnosis
Communicating the diagnosis
Ambiguous loss & grief for healthcare providers
Dementia and staff grief

Treatment

Treatment options
Medications for Alzheimer's Disease
Aricept®
Memantine hydrochloride (Ebixa®)
Reminyl®
Rivastigmine (Exelon®)
Drug approval process

Clinical trials

Checklist for participating in research studies: what should I ask?
Participating in research
How medicines are developed
Your guide to clinical trials
Physician's guide to clinical trials

Planning for the Future

Having a Back-Up Plan
Planning for a day when you can no longer drive
Financial Planning
Managing Finances
Health Care Directives
Health Care Directive Form
Powers of Attorney
Wills

Moving to long-term care

Considering the move to a long-term care home
Finances and Long Term Care
When a Move is Necessary
Preparing for a move
Handling moving day
Adjusting after a move
After the Move - Adjustments for the Caregiver
After the Move - Communicating and working with staff
After the Move - Visiting

For kids and teens

Resource list for kids
Resource list for teens
Just for Kids: Helping children understand Alzheimer's disease
Just for Kids: Helping teens understand Alzheimer's disease