Policy and advocacy publications
One of the things we do at the Alzheimer Society of Ontario is work with people living with dementia, care partners, healthcare professionals, partner organizations and others to identify gaps in dementia care and bring forward practical solutions.
Sometimes that means examining whether Ontario is ready for a new generation of Alzheimer’s treatments. Sometimes it means asking why something as fundamental as sleep can still be so difficult to address in dementia care. Across this work is a common goal: to better understand where the system is falling short, and help identify practical ways forward.
The publications collected on this page reflect that work. They include reports and recommendations developed by the Alzheimer Society of Ontario, contributions made alongside our partners, and selected work helping shape the conversation about dementia care in Ontario and across Canada.
Featured publications
From readiness to access: Building equitable access to Alzheimer’s disease-modifying therapies in Canada
Alzheimer Society of Ontario, 2026 | Expert roundtable report
Developed following the Alzheimer Society of Ontario’s 2026 roundtable at the Alzheimer’s Association International Conference (AAIC) in London, UK. The report builds on Closing the Gap and examines what is now required to move from Health Canada approval toward timely and equitable access to disease-modifying therapies in Canada.
Dementia and Sleep Roundtable Report: Improving Insomnia Care for Older Adults
Alzheimer Society of Ontario, 2026 | Expert roundtable report
Developed following a roundtable held as part of the third annual Older Adult Insomnia Symposium, this report examines gaps in insomnia care for older adults, with particular attention to people living with dementia and care partners.
From community to policy: A frontline model for dementia assessment and brain health
Alzheimer Society of Ontario and partners, 2026 | Peer-reviewed article, Frontiers in Dementia
This peer-reviewed article examines a community-based model for cognitive assessment and brain health developed through work by the Alzheimer Society of Ontario, Ontario Brain Institute, and partners. It considers how frontline service delivery, cognitive assessment, real-world data, and health-system planning can be connected to improve dementia care and inform policy.
Closing the Gap: Strategies to Ready Canada’s Health System for Alzheimer’s Disease Treatments
Alzheimer Society of Ontario, 2025 | Expert roundtable report
Developed from an Alzheimer Society of Ontario expert roundtable on disease-modifying therapies, Closing the Gap examines the barriers Canada must address to prepare its health system for a new generation of Alzheimer’s treatments. The report identifies challenges related to timely diagnosis, healthcare capacity, system navigation, diagnostics and biomarker testing, data, public awareness and care partner supports.
Reports and thought leadership
Dementia and The Path Forward
Alzheimer Society of Ontario, 2023 | Policy paper
Examines Ontario’s evolving Ontario Health Team model and makes the case for dementia to be incorporated into integrated care pathways and prioritized in future Ministry of Health policy.
Roadmap Towards a Renewed Ontario Dementia Strategy
Alzheimer Society of Ontario, 2022 | Policy report and recommendations
Developed with a panel of 21 experts in dementia care, including clinicians, researchers, sector advocates, and people with lived experience. The Roadmap sets out 77 recommendations spanning the continuum of dementia care, from risk reduction and diagnosis to community supports and long-term care.
Projected Ontario budget savings from reduced long-term care utilisation due to a disease-modifying Alzheimer’s treatment
Study commissioned by the Alzheimer Society of Ontario, September 2022 | Health policy/economic study
A study by Hankyung Jun, Zehao Shi and Soeren Mattke examining potential savings to Ontario’s provincial budget from reduced long-term care utilization following the introduction of a disease-modifying Alzheimer’s treatment, including the impact of improved diagnostic capacity.
Right Care, Right Time, Right Place
Alzheimer Society of Ontario, March 2021 | Policy paper
The paper calls for people living with dementia to be prioritized within Ontario Health Teams and makes the case for stronger community-based dementia supports as part of reducing unnecessary hospital and long-term care use.
Building a Dementia Care System That Works
Alzheimer Society of Ontario, June 2019 | Policy paper
This paper sets out an early ASO vision for ensuring that dementia care is embedded within Ontario’s health-system transformation, including minimum expectations for dementia services across Ontario Health Teams.
Government submissions and recommendations
2026 Pre-Budget Submission
Alzheimer Society of Ontario, 2026 | Submission to the Government of Ontario
ASO’s current pre-budget submission proposes five costed investments aimed at strengthening dementia care and reducing pressure on hospitals and long-term care, alongside recommendations for implementing a coordinated provincial dementia framework.
Dementia-Ready Ontario: 2025 Recommendations
Alzheimer Society of Ontario, 2025 | Provincial policy recommendations
Developed ahead of the 2025 Ontario provincial election, Dementia-Ready Ontario outlines policy and investment priorities intended to strengthen dementia care, improve coordination and support people living with dementia and care partners across Ontario.
Action for Dementia: 2025 Pre-Budget Submission
Alzheimer Society of Ontario | 2025 | Submission to the Government of Ontario
Sets out ASO’s recommendations for provincial investment in dementia care, including community programming, workforce education, transitions to long-term care, detection and diagnosis, system navigation and policy infrastructure.
Transforming Dementia Care in Ontario: System Recommendations for 2025
Ontario Dementia Care Alliance, 2025 | System policy recommendations
Prepared by members of the Ontario Dementia Care Alliance, this report sets out recommendations for improving coordination, accountability and access across Ontario’s dementia-care system.
Help for Today, Hope for Tomorrow
Alzheimer Society of Ontario, 2024 | Pre-Budget Submission
ASO’s 2024 submission to the Government of Ontario outlining priorities and investments to better support people living with dementia and care partners.
2024 Pre-Budget Submission
Ontario Dementia Care Alliance, 2024 | Submission to the Government of Ontario
A complementary submission from the Ontario Dementia Care Alliance advancing system-level priorities for dementia care in Ontario.
Promoting Access to Dementia Care in Ontario
Ontario Dementia Care Alliance, 2023 | Submission in advance of the Ontario Fall Economic Statement
Recommendations to the Government of Ontario focused on strengthening access to dementia care and addressing health-system gaps.
No Time to Lose
Alzheimer Society of Ontario, 2023 | Pre-Budget Submission
ASO’s 2023 provincial pre-budget submission, focused on reducing pressure on hospitals and long-term care through stronger dementia care and community supports.
A Dementia Care System for All Ontarians
Alzheimer Society of Ontario, 2022 | Pre-Budget Submission
Recommendations focused on developing a more community-centred dementia-care system and enabling people living with dementia to receive appropriate care in the setting of their choice.
Build Back Better
Alzheimer Society of Ontario, 2021 | Pre-Budget Submission
Recommendations addressing community-based dementia care, respite, First Link® system navigation, dementia training for healthcare workers, supports for care partners and the sustainability of community health organizations.
Targeted Investments for Smarter Health and Long-Term Care
Alzheimer Society of Ontario, 2020 | Pre-Budget Submission
ASO’s 2020 recommendations focused on targeted investments in community supports as part of creating a more coordinated and compassionate dementia-care system.
Work with partners and related publications
Mind the Gap: Closing the Care Divide for Canadians with Dementia
The Brainwell Institute, 2025 | National policy report
Examines the gap between Canada’s National Dementia Strategy and its implementation, with recommendations related to national coordination, accountability, measurable targets, data and sustainable funding.
Health System Readiness for Disease-Modifying Therapies for Alzheimer Disease
Canada’s Drug Agency / CDA-AMC | December 2024 | Health Technology Review
Examines the readiness of Canadian health systems for anti-amyloid disease-modifying therapies, including implications for early diagnosis, biomarker testing, MRI and PET capacity, workforce requirements, and care pathways.
Insomnia Disorder: Care for Adults
Ontario Health, 2025 | Quality Standard
Ontario’s provincial Quality Standard for insomnia disorder. It describes what high-quality insomnia care should include across five areas: comprehensive assessment; individualized, person-centred care planning; management of comorbidities; cognitive behavioural therapy for insomnia; and pharmacotherapy. This Quality Standard provides an important foundation for ASO’s Dementia and Sleep Roundtable Report.
Navigating the Path Forward for Dementia in Canada: The Landmark Study Report #1
Alzheimer Society of Canada, September 2022 | National dementia report
The first volume of the Landmark Study provides national projections of dementia prevalence and care needs through 2050 and examines opportunities to change Canada’s dementia trajectory through risk reduction and improved planning.
The Many Faces of Dementia in Canada: The Landmark Study Report #2
Alzheimer Society of Canada, January 2024 | National dementia report
The second Landmark Study report examines how dementia will affect different populations in Canada over the coming decades, including differences related to ethnicity, race, Indigenous identity, sex, gender and young onset dementia.