Advisory Committees of People with Lived Experience

We support all Nova Scotians on the dementia journey. “Nothing about us without us”, a powerful idea embraced by dementia related organizations worldwide, guides our work at the Alzheimer Society of Nova Scotia. Our commitment to this philosophy includes amplifying your voices on issues that matter to you. To do so, we have established two new advisory committees comprised of people living with dementia and care partners.

The newly formed Advisory Committees of People with Lived Experience will ensure that the voices of those experiencing dementia are included in all aspects of the Society, from strategic direction to program planning. Advisory committee members will provide expertise by sharing insights based on lived experience to support the strategic vision and mission of the Society. Objectives of the committee are to:

• Identify and review advocacy resources. 
• Help guide ASNS campaigns to reduce stigma of people with dementia in Nova Scotia.
• Provide input on research related initiatives.
• Help ensure that organizational wide communications materials have relevant messages.

The Advisory Committees will meet virtually, four times a year. The first meeting was held in May 2024 when the members selected the recipients of the Dementia Friendly Communities Awards.

In addition to the Committees of Lived Experience, there are other opportunities for meaningful engagement including:

• One-on-one meetings with the Manager of Advocacy
• Occasional small group meetings
• Bi-annual town hall meetings
• Projects depending on your interests, skills, and time

Interested in learning more about the committees and how you can get involved as a volunteer? Contact Rosanne Burke, Manager of Advocacy at [email protected].