Resources for people with lived experience
Resources to help people affected by dementia explore and take part in more collaborative roles in biomedical research.
Research plays an important role in improving the lives of people affected by dementia. Sharing your perspectives can help research better reflect real priorities and support outcomes that matter to people like you.
These resources are intended for people living with dementia and care partners who are curious about contributing to biomedical research beyond being a study participant. They are designed to help you learn more about biomedical dementia research and explore ways to connect with the research community.
Learn more about biomedical dementia research
Alzheimer Society of BC and Yukon
- Research glossary
Whether you are a person affected by dementia or someone curious about this field, our glossary provides clear explanations to help you navigate through the complexities of research studies. - How to read and understand research
Expand your research literacy by picking up pointers designed to help you understand key research findings and their implications. - Research and innovation news
Learn about the latest research advances and innovative approaches that are transforming the dementia experience. - Researchers in BC
Meet the researchers dedicated to improving the lives of people affected by dementia by advancing innovative approaches to risk reduction, diagnosis, treatment and support.
Alzheimer Society of Canada
- Alzheimer Society Research Program
The Alzheimer Society Research Program offers funding to innovative researchers nationally.
Alzheimer’s Association International
- Earlier diagnosis
This page includes information on biomarkers for earlier detection, brain imaging, blood tests, cerebrospinal fluid (CSF) tests and genetic risk profiling. - Prevention studies
While Alzheimer's prevention has no definitive answers at this time, research has shown that we can take action to reduce our risk of developing it. This page highlights studies identifying lifestyle changes and helpful brain health tips.
Stay connected with research updates and participation opportunities
- Alzheimer Society of BC and Yukon newsletters
Sign up to receive newsletters from the Alzheimer Society of BC and Yukon, where we share monthly and quarterly updates, including research news, researcher interviews and research engagement opportunities open to the public. - Lived experience partner bulletin
Sign up for the lived experience bulletin to learn about collaborative biomedical research opportunities available for people living with dementia and caregivers. Be sure to indicate research collaboration as one of your interests.
You can connect with us online here, by phone at 604-449-5933 or email at [email protected] and we will set up a time to contact you. - Research webinars
Join our bimonthly research webinar series, Research connects, at 2 p.m. on the last Wednesday of the month.
To sign up for upcoming webinars visit our webinar page. You can also subscribe to our Webinar Notifications to receive regular webinar updates. - Participate in research
Please note, these are opportunities to take part in studies as a participant, not a collaborator. They can help give you an idea of the different types of research projects currently taking place.
Explore collaborative research resources
- Self-assessment readiness tool for partnering in patient-oriented research
BC SUPPORT Unit (PDF) - Ethical considerations for partnering in patient-oriented research
Alberta SPOR SUPPORT Unit (PDF)
If you have any additional questions or would like to learn more, please reach out to the Alzheimer Society of BC and Yukon’s Research and Knowledge Mobilization team at [email protected] or call 1-800-667-3242.