Resources for people with lived experience

Resources to help people affected by dementia explore and take part in more collaborative roles in biomedical research.

Illustrated hands working on organic elements.

Research plays an important role in improving the lives of people affected by dementia. Sharing your perspectives can help research better reflect priorities and outcomes that matter to you.

These resources are intended for people living with dementia and care partners who are curious about contributing to biomedical research beyond being a study participant. They are designed to help you learn more about biomedical dementia research and explore ways to connect with the research community.

Learn more about biomedical dementia research

Alzheimer Society of BC and Yukon

  • Research glossary
    Whether you are a person affected by dementia or someone curious about this field, our glossary provides clear explanations to help you navigate through the complexities of research studies.
  • How to read and understand research
    Expand your research literacy by picking up pointers designed to help you understand key research findings and their implications.
  • Research and innovation news
    Learn about the latest research advances and innovative approaches that are transforming the dementia experience.
  • Researchers in BC
    Meet the researchers dedicated to improving the lives of people affected by dementia by advancing innovative approaches to risk reduction, diagnosis, treatment and support.

Alzheimer Society of Canada

Explore how people with lived experience have collaborated in research

  • Collaborative lab-based research
    This study on detecting brain changes in frontotemporal dementia involved collaboration with people living with dementia and their caregivers, ensuring their lived experience shaped the research project. It is one of six laboratory-based studies within a broader project reflecting on patient and public involvement in lab-based research.

Get connected with research updates and opportunities for engagement

  • Alzheimer Society of BC and Yukon newsletters
    Sign up to receive newsletters where we share monthly and quarterly updates, including research news, researcher interviews and research engagement opportunities open to the public.               
  • Research webinars
    Join our bimonthly research webinar series, Research connects, at 2 p.m. on the last Wednesday of the month.
  • Participate in research
    Please note, these are opportunities to take part in studies as a participant, not a collaborator. They can help give you an idea of the different types of research projects currently taking place.
  • Lived experience partner program
    This program offers people affected by dementia a range of meaningful short and longer-term opportunities to share their stories and firsthand experiences, including opportunities to support research. Learn more.

View collaborative research resources

If you have any additional questions or would like to learn more, please reach out to the Alzheimer Society of BC and Yukon’s Research and Knowledge Mobilization team at [email protected] or call 1-800-667-3242.