The Alzheimer Society of B.C. has a range of short and longer-term opportunities available for people living with dementia and caregivers. We strive to offer a variety of options that fit with people’s abilities, availability and interests. Lived experience partners support our work by sharing their unique perspectives and ensuring that what matters most to people living with dementia, their families and friends is addressed. Sharing your personal experiences can help us take a stand against stigma and lets others on the dementia journey know that they are not alone. Your story matters!
Lived experience engagement opportunities
There are a variety of ways that you can support the work of the Alzheimer Society of B.C.
Here are just a few examples of the engagement opportunties currently available for people living with dementia and caregivers:
- Participation in focus groups
- Social media opportunities
- Advisory groups
- Working groups
- Committee representative
- Peer-led programs
- Public forums
- Legislative outreach
- Participation on the board
Our commitment to you
It is important that engagement opportunities are meaningful and personalized to meet everyone’s unique needs. We will check in with you throughout your involvement with the Alzheimer Society of B.C. to ensure you’re getting the support you need and that you are provided with opportunities for training and skills development.
We will invite you to share:
- Your goals for participation.
- The support you require to participate and express your views.
- Your preferred time, location and method of engagement.
The Society believes it essential to acknowledge the value of contributions from people affected by dementia and the time, energy and expertise they provide. The contributions of people with personal experience of the dementia journey will be valued equally with those of other subject-matter experts (e.g., researchers, health-care providers).
If you are a person with lived experience of dementia interested in learning more about the Alzheimer Society of B.C.’s engagement opportunities, you can connect with us online here and we will reach out to set up a time to contact you. You may also contact us by phone at 604-449-5933 or email at email@example.com.
Hear from some of our lived experience partners
"Dementia has given me a cause: being able to present myself through my art with the purpose of advocacy. Discovering that – wait a minute, I can actually help here!” -Granville, person living with dementia and dementia advocate
Learn more about Granville’s story here.
“I hope sharing my experience can help bring broader representation into the dementia community, to highlight not only the diversity of caregiving relationships but also the differing needs of people living with dementia.” -Ian, caregiver and LGBTQ2S+ advocate